December 31, 2007

Happy New Year!

Phew! The holidays are over. Sometimes I feel like its a mad dash just to get everything in and done by December 25th.

Azer recently got a cold and recovered from it, but left a lingering cough.

Sometimes it is very difficult to figure out if we should take him to the doctor or not. About a week after his cold was gone, his cough would go from being very wet one minute, and dry the next minute. Well, just to be on the safe side, we went to the pediatrician (gosh, those visits can be agonizingly long). His chest X-ray looked fine, and he hadn't really coughed all day. So, it was mainly a matter of telling the pediatrician what usually happens when we have this come and go cough situation. She prescribed Augmentin (common antibiotic) and sent us on our way. Funny thing is, as soon as we got home, he started to sound terrible and had a very wet cough for 3 days.

Then a week later, we had a CF appointment (sometimes I feel like I should just get room and board in the hospital...) and he really didn't gain a whole lot in the past 3 months, but he did grow. I was pretty surprised about that, seeing as lately he's been eating us out of house and home. Donuts, cheese and chocolate don't last long in our house.

Anyway, Happy Holidays, and don't forget to do lots of treatments in the New Year!

August 16, 2007

Talkin'







Azer had another doctor's appointment last week. He gained a few more ounces, and the doctor said he looked good. He had a chest X-ray and that showed up clear too :)

Azer loves having his X-ray done. Ever since I told him that it takes pictures of his bones and insides (he loves having pictures taken). He gets excited when I tell him, "Time for X-rays!". I bet he is one of the easiest patients under 4 to have an X-ray taken. He sits so perfectly like they tell him to. This picture is of him playing in the lobby after the visit was over.

I had to share this experience ...

Tonight I ended up doing his last treatment late tonight. Reema had fallen asleep in her bed, so I decided to let him do his treatment in bed. He thought I should take a picture, so I did (I told you he loves getting pictures taken).

Anyway, he said he wanted to tell me a story. This is something like what he told me, "Today, we eat pizza (for) dinner, like at doctor (We had pizza when he was admitted at the hospital) ... Azer did vest and neba (nebulizer) at doctor too. Lotta sick people at doctor (at the hospital). Reema not sick, only Azer. Azer get sick and sick and more sick. Azer go doctor and get boo boo. Then Azer get happy (I think he means he got better) . See mommy? Azer mart (Azer is smart) and trong (strong). Good story mommy?"

I sat there with my mouth open and finally said, "Yeah, that was a pretty good story". Dang good story for a 3 year old. You bet Azer is smart. Smartest and strongest 3 year old on earth.

May 29, 2007

Gained 2 more pounds!!

Azer had a very good CF appointment today. The doctor looked pretty pleased with how Azer sounded and looked. Plus he gained two more pounds since the last visit! I think it has a lot to do with how much milk he has been drinking lately.


Another round of chocolate milk anyone?


I used to threaten that if he didn't drink his milk I would bathe him in it. Well ... apparently you can really do that!http://pacificcoastsoapworks.com/chocoholics.htm

April 4, 2007

Gained Weight!


Azer had his follow up appointment last week. He actually gained 2 pounds in a little over a month! He has been eating very well and drinking milk after every meal. I think this has helped.


Its starting to get warm in Texas. Soon, it will be warm enough for Azer to start swimming. And the flu season is almost over. Azer has been suffering with allergies pretty bad for the past month; stuffy nose, eye discharge and ear pains. It seems like almost everyone in my area has been having trouble with their allergies. That's the bad thing about spring. I'm just glad its finally time we can go outside and run around.
Speaking of running around, we went to "A Day out with Thomas" this week. The kids (and I) had a great time! Azer was especially excited to actually "meet" Thomas. Now, Thomas is the only thing he wants to watch on TV.

February 10, 2007

We're Finally Home

Wow, after being in the hospital for 14 days, it really feels good to be home. Its good to have both of my kids with me finally. When Azer was in the hospital, the doctor started him on MiraLAX. This is a powdered medication and retains water in the stool and keeps them soft. Azer is taking this at home now to make sure he doesn't get constipated again.

At the Children's Medical Center Dallas, they have playrooms that open at different times of the day to let the kids get out of their rooms to have fun and do crafts. One day, a team came with Build-a-Bear things, and all the kids got to make their own stuffed animals. Our local NBC news came in and filmed some of it and Azer was on the news that night giving a kiss to his new horse, whom he named "Horse". The last night we were there, they had a Valentine's day party, and they had all kinds of Valentine's day crafts. Another news station came and filmed that as well. Once again, Azer was on the news!

The picture above was taken by the Children's Hospital staff.

January 31, 2007

PICC Line Finally


Azer was scheduled to get a PICC line on Friday, and he was supposed to have gotten sedated and not under general anesthesia. The anesthesiologist wanted to do it under general anesthesia and so it was do be rescheduled. The CF doctor didn't see the need for general anesthesia, but it was already too late to be done that day. It was rescheduled for Monday. In the meantime, he had to get a new IV every day. Sunday he had to get one in the morning, and then another one in the evening. They were just not staying in.

Anyway ... he got his PICC line put in, and he was only sedated. It took him a few hours to completely wake up, but all in all, it turned out very well. It looks so neat and tidy compared to the mess of tape that they put on his hand when he has an IV in.

January 25, 2007

Got Admitted to the Hospital


Yesterday, I took him to the pediatrician. The waiting room was very full, and we had to wait for a few hours. His fever had not gone down, so I kept giving him Motrin and wiping him with a damp cloth while we waited. Finally, we were seen, and we were sent down to get a chest x-ray and a kidney, ureter, and bladder (KUB) x-ray to see if there was any blockages. They did see some stool in his intestines, and they found he had pneumonia in his left lung.


We were admitted and the doctor says we will probably be in for about 14 days. They started him on Tobramycin, through IV and inhaled. He seems to be feeling better already, although he still has not had a BM. They are going to try a suppository, and if that doesn't work ... they will try an enema!
We have already requested a PICC line to be put in, so hopefully it will be in by Friday.


January 23, 2007

Azer's Hospital Admission

For the past few weeks, Azer has been having stomach pains. His BM's have been looking more ... "normal". The doctor said he is probably constipated and we started giving him some Milk of Magnesia. His stomach pains seemed to go away, so we thought that was the end of it.

Now, his stomach pains returned, along with shoulder pains. This afternoon he got a fever. Now it is the evening and his fever is up to 103 degrees. I was debating taking him to the ER, but his CF doctor says if Azer should be able to wait until tomorrow morning, and then take him to the pediatrician.