December 20, 2008

Interesting Christmas Songs by Azer


Jingle Bells, Jingle Bells, Jingle all da way. It don't make sense, it don't make sense, da da da da da da HEY! (Yes, he really says "It don't make sense" in the song. I have no idea where he heard this version.)

We wish you a Merry Christmas, we wish you a Merry Christmas, and a happy "ear".

Do not cry, do not cry, do not cry, I'll tell you why, Santa Claw is comin' to town.

Frosty the Snowman was a jolly ... HEY MOMMY, can we make a snowman?
Reema: Yeah, mommy, can we make a snowman? Paleeeez?
Azer: Peeeeeeeez??
Mommy: We live in Texas, it doesn't snow much.
Azer & Reema: awwwwww.

November 16, 2008

Cooler Days are on Their Way...

The kids have been making comments about how Christmas is coming. They keep asking when we are going to put the tree up.

Yes, we live in Texas, and yes, people here do seem afraid of the cold. I grew up in New England. When I first saw the signs that said "Freeze Warning" on them, I really had a good laugh.

But, alright. I did have to stop writing this and bring in the few surviving plants I have outside, since tonight might be a "Frost Advisory" night.

Anyhow, I'm writing this mainly to show you these pictures. A week ago, we decided to enjoy the last remaining 60 degree evenings.

Reema's version of the Statue of Liberty. More like the Statue of Disco.


We have a swing on the patio. The kids decided to get snugly.


And then they actually fell asleep.


Nighty night.

Another CF Clinic Day


Good news, since the last clinic day which was (I think) 3 months ago, Azer gained a pound and grew almost a whole inch! I guess we're doing something right! Doc said his lungs sounded good.

Also, it was Azer's first day to try to do a PFT (Pulmonary Function Test). The results were inconclusive because he didn't breathe out enough. However, everyone said he did very well for his first try. I've had to do this test before, and it really is harder than it looks. The person has to breathe in, and then breathe out as hard and as long as they can, until there is no more air left in your lungs ... until you feel like your lungs are raisins. Well, that's how it felt for me.

November 5, 2008

It's like it's raining leaves!

Perhaps some of you in the colder climates have already lost your leaves, but we have just started to change colors here, and today happened to be one of those breezy, fall days.

As we were walking down the sidewalk, Azer looked up into the sky as a gust blew up, and he said, "Look Mommy, its like its raining leaves!" Very poetic I think.

I have memories as a child of collecting leaves and things in a basket outdoors in my grandparents backyard. I thought the kids would enjoy collecting the brightest leaves. We've got a very bright basket so far!


After looking at the basket intensely, Azer said, "It looks like the leaves are thirsty." Is it time for a science lesson?

October 8, 2008

I have a 5 year old!



Azer is now 5 years old! I was remembering the other night, around the time when he first got diagnosed, I was wondering if he would even live to 5 years old. I didn't expect him to be thriving so well. I can only pray he does so well health wise in school too. I worry about that at times.

He is such a boy lately. Motorcycles, Hummers, loud, noisy trucks, and dirty cars are usually part of his conversation.

I really need to say something here: Both of my kids talk, a lot. More than a lot. In a day, they talk more than a group of very busy business people that are on the cell phone all day. Seriously. They never stop talking. It really drives me crazy. Remember a few years ago when a speech therapist used to come over and try to "teach" him to chew his food and speak more? She told me that if I didn't continue therapy, he might not learn to talk at all. Yeah, right. Its probably a good thing I never did continue with it. I don't think a child, or two children, could talk any more than they do!

Another announcement of news: Both Azer and Reema learned to ride their bikes without training wheels! On the same day even! I had to go buy myself a bike just to keep up with them. Wow, those kids. That's the first thing they ask when they wake up now, "Can we ride bikes today?" The exercise is good for me ... however at the end of the day, I do regret it ;)

September 25, 2008

The Texas Rangers





Since Azer's love of baseball is developing, we have been taking him to Rangers games (Go Rangers!). We had a awesome blessing of meeting the catcher for the Rangers on Sunday (Gerald Laird). Azer was totally thrilled.

I found a great way to help Azer speed his eating up is by saying that MLB players always eat lots of food all the time to give them energy.

September 19, 2008

Outdoors


Azer has been excelling at his pitching skills a lot. He doesn't seem to have any problems breathing when he runs, and he is really loving baseball. Hopefully, next year he can join a T-ball league of some sort.

Reema learned how to whistle a few days ago, so that's pretty much all to be heard coming from our house lately. She doesn't whistle any tune in particular, just random notes.

I realized this is going to be the last fall, winter and spring I spend with them where they don't have to go to school in the daytime. I feel proud but sad at the same time, and a little scared too. They will both be starting next year. My two babies somehow grew into kids.

Next month I'm going to have a 5 year old. Its hard to believe. They both seem to be extremely brilliant about figuring things out. When I told Azer that both he and his sister are going to school next year he said, "Gee Mommy, what are you going to do when the house is so quiet?" It's so funny ... even he realizes they make quite a bunch of noise when their together.

Azer has been eating better lately, now that the pressure is off. No problems getting his supplemental drinks in there either. We have another CF clinic day in November. Hoping for some more weight gaining. He seems to be getting much stronger lately. He has been doing sit-ups (trying to copy my attempts at getting rid of flab, hehe). His pitching arm (left arm) is getting some nice little muscles!

August 16, 2008

Relaxed!


Things have been much more relaxed for us around eating time (mostly for me I suppose). Ever since our CF Doctor had that talk with us, I suppose I don't feel totally devastated every time he doesn't eat. This huge burden has been lifted.

I think Azer is a lot happier too. We took the reward deal away, so there is no pressure. If he doesn't eat, its ok. We go on with life.

Reema will be four years old at the end of this month! I can't believe it already! Every year, between the end of August and the beginning of October, I have two childen of the same age. Azer turns 5 October 6th. So, this year, I will have two 4 year olds for a little while.

August 7, 2008

Great Clinic Visit


Well, the past few months, Azer's appetite has dwindled to nearly nothing. He has been taking his supplements and Carnation Instant Breakfast (yuck!) very well. I was very scared that he was loosing weight. Its been very discouraging seeing him just chew and chew.


I asked the dietitian if it was possible to switch appetites between our children. Reema eats us out of house and home.

So, we went to clinic today and it was very surprising that Azer gained weight. I was doubtful when the psychologist and dietitian came in. They had a few ideas that we could try, but I was feeling very frustrated and hopeless after they left.

So, our primary CF doctor came in, I suppose he could see how I felt, as it was written all over my face. He sat on the exam table for a good while, more than a half an hour, and looked in my eyes and told me that I am doing such a good job as a parent. He said Azer looks healthy, and happy. He said that no matter what we have done in the past, his weight and growth has been steady. He said not to feel like we haven't done enough. He said even he couldn't get Azer to eat if he tried.

I've never had a doctor tell me that we have been doing a good job. Doc even said that he didn't know how he would do it if he had a CF child. He gave me such hope and peace today. I feel like I don't have to worry if Azer doesn't eat. Because if he doesn't eat, its not the end of the world. He even gave Azer hope that he'll play for the Texas Rangers someday!

June 12, 2008

Hopefully Hungry





Doctor's Visit -

Good news ... he gained a little bit of weight, at least he's not loosing. The doctor has decided to try an appetite stimulant on Azer to see if it will make him a little more hungry than usual. I hope it works. It's very frustrating to have a CF child that needs to eat a lot of calories and is just not hungry.

Anyways, his X-ray looked pretty good, that's always good news to hear. The doctor did remind us that in order to keep his lungs clean and functioning as best they can, he also needs to have good nutrition.

Its very hot here in Texas. Time to add lots of extra salt and gatorade to his diet!

May 29, 2008

Busy, too busy

Yes, I know. Its been way too long. Ok.

Since the last post, he has gained very little weight. He weighs nearly the same as he did last year. He has grown, but has not gained any body fat. He's going though the "not really hungry" situation. Meal times have been frustrating as they seem to go very s-l-o-w-l-y.

On the other hand, he hasn't needed antibiotics, and hasn't gotten any colds or lingering coughs. He is happiest when he is not being pushed to eat. So we try to keep that to a minimum. With increasing height, he is also increasing in handsomeness. ;)

They had open-house day at our local police station. I think he needs to grow just a little bit more before signing up...