We had a clinic visit yesterday. Pretty close to Christmas hu?
The good news and the bad news. The good news is he blew his very hardest on his PFT with very little coughing and his best FEV1 was 90%. His first blow was 85%. I am very relieved by that. So it seems that the Hypertonic Saline and the Flovent are working.
The bad news: he lost two pounds. He has only been eating a few bites during lunch and dinner. He has been eating so very little. He just has nearly no appetite. I just don't know what to do to fix it. Even with all his favorites, nothing seems to stimulate it. I know he tries so hard to eat what he can. I suppose there is only so much to be expected.
So... the dietitian decided to add this to the plan. A bolus feed of a can of formula for "breakfast", and a half a can during lunch, and then let him eat what he feels like during dinner, and then doing his nightly feed as usual. So, I'm trying to stick to a "feed" schedule even during Christmas vacation.
I want to wish you all a Merry Christmas, and I hope the ones who need to gain weight, gain. And the ones who don't need to gain weight enjoy their meals for the ones who can't.