June 1, 2010

G-Tube maybe tomorrow

So, after having multiple conversations with an uncountable number of doctors and surgeons, it looks like Azer will most likely be getting his G-tube tomorrow morning. The last doctor I spoke with said she is able to put the button in, instead of having to put in a 12 inch tube first, and then waiting about a month for the button. If they can do it that way, I'm sure Azer will be pretty happy. Regardless, I think Azer is getting better about talking about the G-tube. The Child Life specialist came over again today to talk a little more with Azer. I think since I've been more relaxed talking about the G-tube has helped him relax more about it as well.

Soo ... send prayers and good thoughts our way. I'll write a post as soon as something else happens.

Addition: The actual surgeon walked in a few minutes ago ... here are the details. They will made a hole in his belly button where they will insert a laparoscopic camera. They will made an incision in his side where they will pull the stomach up to the surface, and they will inflate his abdomen with gas so they can see. If everything goes ok, they will put the Mickey button in. If things don't go right, they will make a larger incision and insert the 12 inch tube.

GI study done!

Well, Azer just got done with his GI study. He laid down on a table
and had a big x-Ray machine over his stomach area. He then was
supposed to drink
large gulps of the barium. But he couldn't drink enough of it, so
unfortunately he had to have an NG tube put in temporarily. They shot
barium down the tube and into his intestines, stomach and esophogas.
The good news is that he does not have SMA syndrome or any other type
of compression. All the "tubing" is where it's supposed to be. We did
see the reflux however, so that's probably why he has such a hard time
eating. He probably doesn't know what it feels like to not have it.
Azer said the NG tube was really nasty. He was gagging and crying
through the whole time. He says the back of his throat hurts a little.
After they pulled it out, he said he's hungry. I'm going to order food
now!

GI Study

Well, per doctor's order, Azer has had nothing to eat or drink since 4
this morning. I guess they want him to have an empty stomach. If
everything looks good, he will probably be getting the G-tube on
Wednesday. Azer says he feels angry about it, because he doesn't think
he needs the tube. He'd prefer to just keep drinking milkshakes. The
GI study is scheduled in about 20 more minutes. But, sometimes things
get delayed. I hope not though, Azer says he is hungry.
Yesterday he would say he was hungry before meals, but he didn't have
very much to eat.