May 15, 2014

CF Clinic


Well, he's been feeling pretty good the past 3 months. No real increases of cough. His oxygen was excellent, as always. He gained a few pounds. I've been grateful that he has had a fairly good appetite most days. He has been having floaty, fatty stools lately, which had the doctor and dietitian a bit puzzled. He is on a pretty high dosage of enzymes right now. The only way they could increase the dosage was if he gained more weight. They try to keep the enzyme dosage under a certain limit because if he was on a too high dose for too long, it could cause erosion of the intestinal wall. 

His PFT's were down to 87% Fev1 today. They are running a culture to see if he is growing anything that needs to be treated. The main reason they think his lung function is down is due to allergies. If allergies can affect a normal person's eyes, nose, ears and throat, they most certainly can affect the lungs of a person with CF!   


He got a new Acapella today! It seems to work quite effectively as he was coughing up all kinds of lovely things, and guess who got to hold the specimen cup ;-). The Acapella works by creating positive air pressure in the lungs to force open the alveoli which helps push the mucus into the bigger airways where it can be coughed out. In fact, he was still coughing up mucus this evening!  

The doctor noted how clean his G-tube stoma is. Azer said he keeps it clean, and I muttered how he cleans his stoma better than his room!
It is 15 days until the Great Strides CF walk! We have raised $80 so far! If you are interested in donating or walking with us, just click here! 



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