Welcome To Azer's CF Website

Our son Azer was born on October the 6th, 2003. He was so perfect. Those tiny feet and hands. He was born with a lot of hair too. He was born in Colorado. In Colorado, included in the newborn screening for diseases, they did the mandatory test for Cystic Fibrosis. We had no idea what Cystic Fibrosis was at the time.

Soon after Azer was born, he started to loose weight. In only a week he had lost a pound or more. He also had a cough. The pediatrician didn't know why. When the results finally came back from the newborn screening, they said he might have CF. So they sent us off to another place to get a sweat chloride test. It turned out to be positive.

Even though we felt devastated, we soon came to learn that the diagnosis of CF is no longer a death sentence thanks to the new therapies and medications available today.

The average age of survival today is 38 years! Not many years ago, children with the disease died as children. The average age of survival keeps climbing. It does help to inform people about CF and the earlier the diagnosis, the better. I believe that it should be mandatory in ALL states to test newborns for CF. The Cystic Fibrosis Foundation is working hard at finding a cure, and also is developing new drugs to help keep improving the quality of life for people like Azer. Click here to read more about Azer’s first few weeks.

The Purpose

The purpose of this website is to make people aware of Cystic Fibrosis, educate and share information about CF, and to let people with CF or guardians of people with CF know that Cystic Fibrosis is only a disease, not a disability.

Click here to watch Azer’s Montage.

Cystic Fibrosis is a genetic disease, which means it has been inherited from both parents. There are 30,000 people in the United States that have Cystic Fibrosis. Cystic Fibrosis is caused by a defect in a gene that causes the body to produce thick, sticky mucus. The main two areas in the body affected by the mucus is the airways, and the digestive system.

Click here to read more about Cystic Fibrosis...